I don’t even now where to begin anymore for it seems that every day something else goes wrong. Still waiting for my January 31, 2017 appointment for YAG procedure (but only one eye) to remove the scar tissue. The office can’t even give me a general idea of how long before the second eye is done. Then I have to go back to be fitted for glasses and the way they book far in advance I’m thinking that won’t happen until March or April. Meanwhile I have to keep replacing the cheater glasses as my vision worsens. I’m currently at the next to the strongest strength and have to practically have to hold something directly in front of my face to be able to read it. Then of course there’s the green circles and arches that appear every time I look directly at a light. Visual disturbances have always been a primary trigger for migraines so it’s like a vicious circle. I don’t want to keep the lights dimmed because of Sasha’s impaired vision so I basically try to avoid looking at lights or lamp fixtures. I don’t go out unless it’s to the doctors so haven’t left the house since Dec. 6.
When I saw the new neurologist on December 2, I was told his staff would call me as soon as they got the preauthorization for the Botox injects for migraines (it’s very expensive so needs a PA). They also said that once they had the PA they’d get me right in because I haven’t had Botox since June 13 and it’s supposed to be given every 3 months. I’ve been getting Botox for several years and my insurance company approves in 48 hours max. Since my appointment was on a Friday I hoped to hear from them no later than the following Thursday, Dec. 8. Nothing. So I called their office on Monday Dec 12 and after speaking to two different people was transferred to “Chrissy”. Left a VM for her around 10 am but no callback. Long story short I called every day and always had to leave a VM. On Thursday Dec. 15 I called and instead of the elusive Chrissy’s line I chose the prompt for making an appointment. Told the woman my story and upon checking my file she didn’t see anything about the Botox PA. I called again on Friday Dec. 16 and used a line I haven’t used in several years. Once again I chose the prompt for making an appointment and when a woman answered I offered my condolences on Chrissy’s death then asked to be connected with whomever took her place. The woman was quite shocked and said “Chrissy’s not dead!!!”. I started my response in a sickening sweet voice I break out from time to time and said “Oh dear me, I must apologize then because I surely thought she was. Followed that with full bitch mode by saying “Why else would someone fail to return nearly a dozen phone calls? What other reason could there be for such egregious incompetence? And by the way, will you send me an application because I’ve always wanted a job where I did nothing yet collected a paycheck”. She was really rattled but assured me she would get a message to Chrissy. I laughed and said that may be but she wouldn’t call back. She said she’s send the message from her terminal to Chrissy’s. Then I told her to add that IF Chrissy called back she would be reaching an advanced practice nurse so don’t even try to give me any BS “because that won’t float”. I didn’t even bother waiting to see if Chrissy (whom I’d decided may not be real) to call; I called my insurance company who has always been wonderful to work with. Upon checking the file and phone log, she told me someone from the neurologist’s office called on Tuesday Dec. 6 but something must have come up as they said they would call back in a minute. The insurance company said there was no record of a callback. I really had to fight to hold back tears at this point as I was beyond frustrated. The insurance company said they would have their pharmacy department reach out to the office and that she personally would reach out. By the way, never did hear from Chrissy that day. Om Tuesday Dec. 20 the same woman from the insurance company called at 9am. She started off ny asking if the neuro’s office had contacted me and I said no. She said that both she and the pharmacy department left VM’s the previous week and they had not been returned either. She asked my permission to open up a case so they could track this providers office and of course I said yes. She also suggested I call the office to at least make the appointment for the injections as they had approved them. Lo and behold before I had a chance to call the neuro’s office they called me. After I got up from the floor where I had collapsed in shock, Chrissy told me she had taken a few days off the previous week. I won’t bore you with the details of what I said but it wasn’t pretty. She countered with “I was waiting on your insurance”. I followed up with something that also wasn’t pretty. She told me she had good news for me though ~ she had my appointment date. January 2, 2017. I was like WHAT?????? So by the time I get the injects it will be 7 months since I last had them and I’ll be so far off schedule that they won’t be effective until the second set of injections in April. I’m going to get them in Jan. but have already started looking for a different neurologist. He might be great but his staff is hands down the worst I’ve ever encountered and since moving here I’ve met my share of rude and incompetent medical support staff. I’m just not putting up with this nonsense all the time. Before I bid a farewell to Facebook I met a woman in a GSD group from Maine. We struck up a casual conversation and then I didn’t see her for a few days. When she came back online she said she’d had a “breakthrough” migraine. Not knowing what type of medication she took I told her of the good results I’d had with Botox. She said that she gets the injects every 3 months in Worcester MA. I remember being shocked as from her location to Worcester is over 250 miles and a 4 hour drive ~ one way! I wondered why she would travel so far but after my “Maine Botox Experiences (yes plural) I think I can understand. I initially made an appointment with a neuro in Lewiston (same city the current one is located) in 2011. They booked me out over 7 months which put me into 2012. A week before my appointment the office called to say they had to cancel my appointment as the neuro was out. I said let’s book it NOW. Then they said they didn’t know when he’s be back. Very odd. I called a week later and they said he was still out. A few weeks later I received a letter saying he had left the practice but they would be contacting me within 10 days to schedule me with one of the other providers. Yes you guessed it ~ they never called. Then I made an appointment with a pain treatment center that did Botox for Migraines. Also in Lewiston which is 55 miles one way. Now Botox has to be refrigerated so you pick it up from the pharmacy on the way to the appointment and keep it in a small cooler bag. First visit went well. The second visit I picked up the Botox and we were about 15 miles from Lewiston when I received a call from the office saying that Dr. XYZ “doesn’t feel comfortable doing Botox and would prefer you book with Dr ABC”. I said “Are you kidding me? My appointment is in less than 30 minutes, you KNOW I live over an hour away, and Dr. XYZ decides NOW that’s he not comfortable dong Botox???”. I had to go the following week to see Dr. ABC whom I actually liked better. Saw him 2 more times and bam! The pain center closed. At this point I gave up on Botox I really did. Then a few months later I was driving down a road in the town closest to me (16 miles away) when I saw something that made me slam on the brakes. Hanging outside a medical building was a shingle for the neuro I had to wait over 7 months for and then he poofed from the practice! I jotted down his phone number, made an appointment and got in within a few weeks. He’s the one who’s been giving me injections until he announced this past August that he was closing his practice in September and relocating to Kentucky. I swear to God this is so bizarre I couldn’t make this up as I’m not that creative. And as I said in a previous migraine post, the states are clamping down on doctors so to get a small prescription for pain medication is like pulling teeth with a pair of tweezers ~ virtually impossible.
I am most definitely not in the holiday spirit. It was with great reluctance that I put a tabletop fiber-optic tree out today and called it good. It’s hard to be “ho ho ho” when you can’t see the floor, you’re terrified to walk outside lest you fall because you can’t see the ground and lights cause visual disturbances which in turn triggers a migraine. Extremely stressful and it’s gotten to the point where I don’t even want to see anybody. In the past when I was stressed or feeling pressured I turned to books or knitting but haven’t done either in over year. I was dreading Christmas anyway because my mind has been drifting back to last Christmas. Our dear friend spent the day with us and following dinner we sat in the great room with the fire crackling and watched movies. I was still very upset over the death of my dog on November 5 and it was his sarcastic humor that got me through both Thanksgiving and Christmas . Yet for some unknown reason I never took a single picture either holiday and after he committed suicide in April 2016 I’ll never have that opportunity again. He was our adopted family member; we spent every holiday together. It’s more difficult than I’d imagined.
So I spend my days just piddling around, use the dictating app on my laptop to write a blog entry or Siri on my iPhone to make a call for me. The dictating app hasn’t mastered my NY accent so I have to try and manually correct the apps interpretation of some of my words (don’t even ask). And Siri the brat. Took me 2 years with my previous phone to train her and now I have to start all over again. Just today I told her to call “Mt. Blue Pharmacy” to which she replied “I don’t see a listing for your mother”.
Since this has been such a whiney post I’ll end with something funny. I have the new iPhone 7 but have only set up the most basic features until I can see better. There’s a new feature that, when enabled, lets you say “Hey Siri” and she’ll answer. The other night for the heck of it I said “Hey Siri”. The response was definitely a Depends moment. Siri said “I can’t talk right now as I’m having a staring contest with iPhone 7 Plus and I think I’m winning”.